Thursday, October 6, 2016
Let's Talk Aardvarks!!
No, this isn't going to be a blog about the little guy above......but I need a code word for poop (I was going to say 'diarrhea', but I think that is one of the most hated words in the English language, along with 'moist' for some reason, but I digress)....so AARDVARK it is!
My alarm goes off Wednesday morning at 4:15 am for my trip/flight to Houston. I get to MD Anderson at 7:45 for blood work and head up to wait for Dr. Patel. Mindy shows up with her signature chocolate chip cookies, which are amazing, and we are called back within 30 minutes. A nurse comes in and asks a few questions, and then Dr. Patel's side kick comes in and asks a ton of questions and does an exam. Here is where the conversation takes a turn towards our odd friend pictured above. "How many aardvarks are you having a day?" "When was your last aardvark?" "Does your stomach cramp before your aardvarks?" "Is there a sense of urgency with your aardvarks?" You get the picture. A couple of those answers were yes, and here is where the problem arose.
Dr. Patel comes in and says "yeah, so you aren't doing your nivo/ipi treatment today, but thanks for the cookie!!!" Wait what???????? So I put on my 'sales' hat and say "Let me change the detailed description of my aardvarks, and convince you that I'm getting nivo/ipi in 2 hours." Dr Patel: "you can talk all you want, but you aren't getting nivo/ipi today.....and do you use a special margarine or something in these cookies, they are fantastic!!!" I talk and beg for 15 minutes and she and Mindy finally convince me to head back to Hobby Airport and fly back to Big D.
So here is the basic reason why I didn't get an infusion yesterday. In the clinical studies of nivo/ipi, they had a couple of people die........yeah, DEAD, because they ignored stomach issues that lead to intestines bursting and other nasty stuff like that. So they take any stomach issues very seriously, to the point where if you are having 5+ aardvarks a day, they may pull you off the study/drug all together. Nivo/ipi stay in your system for 60+ days, so no biggie to skip a week and see if we can take some "anti-aardvark" meds.
By the time I got back to the office I already had new appointments set for next Wednesday, and the nurse has called 3 times today to get aardvark reports. I can see it now.... Next on Fox News, we break from the hurricane coverage to give you a live update on Mike's aardvark!!!!!!
Thanks to everyone for the prayers, calls, texts and especially to Aunt Emmy and Uncle Bill who keep arranging flights to Houston, that is a huge answer to prayers!
Love to everyone! Next week possum talk!!!!!!!!